Feedback to the Institute of Medicine on the provisional committee appointments for the ME/CFS clinical definition study is due December 23rd.
Not everyone in the advocacy community believes submitting feedback is appropriate. But if you wish to provide any input on the panelists, or on people you think should be added to the panel, there are two ways to do so.
- Submit feedback through the form on the IOM Committee page. Scroll down to the “Feedback” button at the bottom of the page. The study director, Dr. Carmen Mundaca, told me via email that there is no character limit to the size of your submission.
- If you prefer to submit your feedback as an attachment, you can do so by emailing it to mecfs@nas.edu.
I asked Dr. Mundaca if feedback is viewable by the public. She said that some feedback related to the overall balance of the panel might be placed into the “Public Access File,” a collection of documents viewable by the public. But not all feedback submitted will go into that File, so this is not like the public docket system many people used for the FDA April meeting.
Remember, all comments are due December 23rd!