Author Archives: Jennie Spotila

RFA Ticker, 2/8/16

Total RFAs Issued by NIH: 131 (October 2015 to date) Total Dollars Committed to RFAs: $1,545,000,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 2/1/16 8 … Continue reading

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RFA Ticker, 2/1/16

Why do I keep updating this RFA (Request for Applications) tracker every Monday? Because an RFA comes with set aside funds to stimulate research in a particular area. The last ME/CFS RFA was issued in 2006. Over the last ten … Continue reading

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NIH: Who Reviewed Grants in 2015

In order to get NIH funding, a researcher has to succeed in several levels of application review. A persistent controversy in the field of ME/CFS is the allegation that grant applications are not reviewed by ME/CFS experts. So let’s take … Continue reading

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RFA Ticker, 1/25/16

Total RFAs Issued by NIH: 117 (October 2015 to date) Total Dollars Committed to RFAs: $1,507,450,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 1/18/16 2 … Continue reading

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Grief: Too Many Words

When my mother died, I could not sculpt words around my grief. Even several months later, I still could not express how grief felt to me. Now, a year later, I find I have too many words to shape and … Continue reading

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NIH RFA Ticker, 1/18/16

Total RFAs Issued by NIH: 115 (October 2015 to date) Total Dollars Committed to RFAs: $1,502,950,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 1/11/16 10 … Continue reading

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Long Term Disability Insurance/ERISA

If you are fortunate, then your employer provides you with disability insurance. When you become disabled, this insurance pays you a percentage of your salary, and you are not solely dependent on Social Security Disability. In real life, it is … Continue reading

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Survey: Barriers to NIH Funding

Reprinted with permission of Lily Chu: Over the years, IACFS/ME Board members have heard anecdotally from researchers, clinicians, and others that obtaining government-sponsored funding for research related to ME/CFS can be quite challenging, in some cases more challenging than that … Continue reading

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NIH RFA Ticker, 1/11/16

Total RFAs Issued by NIH: 103 (October 2015 to date) Total Dollars Committed to RFAs: $1,431,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 1/4/16 0 … Continue reading

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NIH RFA Ticker, 1/4/16

Total RFAs Issued by NIH: 103 (October 2015 to date) Total Dollars Committed to RFAs: $1,431,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 12/28/15 0 … Continue reading

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