About Me

I am Jennie Spotila, and I fell ill with Chronic Fatigue Syndrome on October 6, 1994. I am disabled, and mostly housebound, but I have been active in writing about CFS and advocating for more research funding since the late 1990s. I served on the Board of Directors of The CFIDS Association of America from 2006 to 2011, and served as Chairman in 2008 and 2009. I have testified before the CFS Advisory Committee on multiple occasions, and I have given many media interviews about the illness. Occupy CFS is a blog about living with CFS, including the politics, research, medicine, and personal experiences. All the opinions expressed here (unless otherwise noted) are my own.

Questions? Email me at jspotila@yahoo.com

Please refrain from commenting on this page.

6 Responses to About Me

  1. Francesca says:

    Jennie, You are doing a great job… Is there somewhere I can write you in private? Francesca

  2. Pingback: Falling Behind and Flailing About: the NIH, P2P, Dr. Francis Collins and Chronic Fatigue Syndrome - Health Rising

  3. linda maust says:

    Interesting that I also fell ill with this in 1994, after having epstein barr and cytomeglia viruses. Exact date was April 19,1994.

  4. Rohit Agarwal says:

    Hi Jenni,

    My name is Rohit and Iam from India.

    Am fighting with this disease since past 5 years and really do not have an idea where to get medical and psycatric help. Its good to see that you are doing a real great job.

    Please advice where i can get more information on CFS.


Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>