About Me

February 27th, 2012 Leave a comment Go to comments

I am Jennie Spotila, and I fell ill with Chronic Fatigue Syndrome on October 6, 1994. I am disabled, and mostly housebound, but I have been active in writing about CFS and advocating for more research funding since the late 1990s. I served on the Board of Directors of The CFIDS Association of America from 2006 to 2011, and served as Chairman in 2008 and 2009. I have testified before the CFS Advisory Committee on multiple occasions, and I have given many media interviews about the illness. Occupy CFS is a blog about living with CFS, including the politics, research, medicine, and personal experiences. All the opinions expressed here (unless otherwise noted) are my own.

Questions? Email me at jspotila@yahoo.com

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  1. March 31st, 2014 at 16:35 | #1

    Jennie, You are doing a great job… Is there somewhere I can write you in private? Francesca

    • Jennie Spotila
      March 31st, 2014 at 18:49 | #2

      Email me at jspotila AT yahoo DOT com.

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