I am disabled, and mostly housebound, but I have been active in writing about ME/CFS and advocating for more research funding since the late 1990s. I served on the Board of Directors of The CFIDS Association of America (now the Solve ME/CFS Initiative) from 2006 to 2011, and served as Chairman in 2008 and 2009. I have testified before the CFS Advisory Committee on multiple occasions, and I have given many media interviews about the disease. Occupy ME is a blog about the politics, research, medicine, and personal experience of life with ME.
Questions? Email me at firstname.lastname@example.org