IOM Panelists: TL; DR
I realize that the past two weeks have been a veritable blog-alanche here at Occupy CFS. There’s been more research and writing here on the IOM ME/CFS panel than any other place online of which I am aware. I know that it’s very hard to get through so much material, and several people have requested the Too Long, Didn’t Read version of all the posts in a single list. I’m happy to oblige!
- The IOM panel was announced on December 3, 2013. (see official roster)
- I worked with nine other advocates to research each panelist. (see our methods)
- We all had different views of how/whether to participate in the IOM process, but we set our differences aside to collaborate on this project.
- We found no conflicts of interest, as strictly defined in the IOM’s policies.
- We had a difference of opinion on whether things like NIH funding or other interests constituted a conflict of interest. (see our summary on COI and overall balance)
- We agreed that there are not enough ME/CFS experts on the panel.
- We do not categorically reject the presence of any psychologist/psychiatrist on the panel. After all, we all want Dr. Leonard Jason on the panel and he is a psychologist.
- Dr. Ellen Wright Clayton, chair of the panel, has a JD/MD and specializes in ethics of genetic screening and research. (see our writeup of the “unknown” panelists)
- Dr. Margarita Alegria is a psychologist specializing in mental health research in multicultural populations. We have serious concerns that she may believe ME/CFS is a psychological condition. (see our writeup on her bias)
- Dr. Lucinda Bateman is an ME/CFS expert clinician-researcher, with a large ME/CFS clinic. (see our writeup on the “known” panelists)
- Dr. Lily Chu is a clinician-researcher whose career has been hijacked by ME/CFS.
- Dr. Charles Cleeland is a psychologist specializing in cancer pain and qualitative measures.
- Dr. Ronald Davis is a renowned geneticist, and has a close family member with ME/CFS.
- Dr. Betty Diamond is a rheumatologist specializing in lupus.
- Dr. Theodore Ganiats has expertise in family medicine and healthcare outcomes. We have serious concerns about his close ties to the AAFP and a colleague who has said that ME/CFS is a psychological condition. (see our writeup on his bias)
- Dr. Betsy Keller is an exercise physiologist studying ME/CFS.
- Dr. Nancy Klimas is an ME/CFS expert clinician-researcher, with expertise in immunology and a large clinical practice.
- Dr. Martin Lerner is an ME/CFS expert clinician-researcher, specializing in infectious disease. He is also a recovered ME/CFS patient.
- Dr. Cynthia Mulrow is an expert on systematic reviews. We have serious concerns about her bias based on two CFS publications in 2001. (see our writeup of her bias)
- Dr. Benjamin Natelson is an ME/CFS expert clinician-researcher and neurologist.
- Dr. Peter Rowe is an ME/CFS expert clinician-research, with one of the largest pediatric ME/CFS practices in the country.
- Dr. Michael Shelanski is a cell biologist specializing in Alzheimer’s disease. We are puzzled about his presence on the panel.
- You have until December 23rd to submit feedback to IOM about the panel. (see how to do that here)
Once again, I have to acknowledge the group effort that made this series of blog posts possible: Lori Chapo-Kroger, Claudia Goodell, Chris Heppner, Denise Lopez-Majano, Mike Munoz, Darlene Prestwich, Tamara Staples, WillowJ, and one advocate who wished to remain anonymous. My sincere thanks to them all.