Monthly Archives: November 2012

Rest Medicine

I have been working really hard at resting. That probably doesn’t make sense, but I have been struggling to incorporate preemptive rest into my routine and it feels like a lot of work. The rationale for preemptive rest is that … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , , | 6 Comments

Gratitude

We celebrate Thanksgiving in the United States on Thursday, and you may have seen the 30 days of gratitude meme on social media this month. I decided to share my gratitude in one post, and focus on aspects of my … Continue reading

Posted in Occupying | Tagged , , , , , , | 3 Comments

FDA Webinar on Advocacy

Yesterday, the FDA hosted a webinar for the ME/CFS community on “Working Together for Change.” Their stated goal was to show what has been successful for patient groups in the past in working with FDA and other entities. The slides … Continue reading

Posted in Advocacy | Tagged , , , , , , , , | 12 Comments

In Concert

I went to a concert on Saturday night. I know, right? Given how sick I have been, and how much I have struggled after outings, a concert sounds pretty crazy. In fact, I haven’t been to a concert in many … Continue reading

Posted in Occupying | Tagged , , , , , , , , , | 5 Comments

CFSAC Testimony of Dr. Joan Grobstein

Dr. Joan Grobstein delivered these comments to the CFS Advisory Committee at its October 3-4, 2012 meeting. She has kindly given me permission to publish them here. Hello.  I’m Dr. Joan Grobstein.  I’m a physician. My topic is responsibility. Recently … Continue reading

Posted in Advocacy | Tagged , , , , , , , , | 4 Comments

Hurricane Drunk

No walls can keep me protected No sleep, nothing in between me and the rain And you can’t save me now I’m in the grip of a hurricane I’m gonna blow myself away (Florence + the Machine)   Hurricane Sandy … Continue reading

Posted in Occupying | Tagged , , , , , , | 3 Comments